“I’ve never told anyone this, but…”

 

 

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Someone emailed me recently in response to a post I wrote. Like myself, this person lives with Type 2 diabetes. But astoundingly, aside from their doctor, they have told no one! That they disclosed this information to me speaks to the sense of safety in the anonymity of email. This person confessed to be ashamed of having this condition, hence the “secret “. They also carried the burden of the belief of not having been able to avoid developing Type 2.

 

Maybe they’d taken to heart the frequent urging found everywhere in the media. If you just lose weight, eat “right”, exercise, choose different parents, you can avoid ending up with diabetes. Reading the email, my heart softened, and I felt sadness imagining their loneliness around such a massive part of their life.

 

Although I don’t know this person, it sounded like they carried such a level of responsibility towards this outcome and had made their condition so personal that having become diabetic equaled failure! They obviously felt they hadn’t done the “correct” things, having allowed this condition to develop due to their own bad habits, and now was paying for a lackadaisical attitude by developing this chronic condition. As if Type 2 isn’t sufficient on it’s own to manage, they have to put in considerable effort keeping it hidden. I can’t speak to if there is any physical suffering, but I can read the immense mental pain they’re enduring.

 

Shame…secrets…the difference between them, and why we keep certain things hidden.

 

If someone leans in close to you, clearly wanting to share something and starts off with the statement “I’ve never told this to anyone…”, how do you react?

 

Like most of us, your ears prick up. You’d pay attention, intrigued maybe honored that you’ve been chosen to receive. Your curiosity gets triggered by what deep secret is about to be

images (2)aired. But not just to anyone, to you…like your being who you are occasioned this sharing. From that often comes a sense of being special to that person.

 

Let’s take a deeper look at this. Chances are the person sharing either no longer has to hold onto the secret, or has decided they need to let go of something they feel shameful about. On the surface, these two options may appear quite similar. A secret about to be shared is often prefaced by “Don’t tell anyone…” or a version of that. It’s far less personal, maybe something to do with a person, but not specifically about a person.

 

“I’ve never told anyone, but…” usually pre-empts a disclosure about the self. But the belief they’re about to disclose is an unacceptable, yet integral, part of themselves, something kept hidden, often convinced they’ll barely survive it being known, it’s that despicable in their mind. Just thinking about it fills the body/mind with shame, a deep emotional energy that makes us feel if others only knew this shameful fact about us, they’d see we’re unworthy, or utterly unlovable.

 

It’s a rare therapy client who hasn’t eventually led up to haltingly admitting an aspect of themselves, a dream, a behavior, a long-ago choice made but now second-guessed that they buried under layers of more acceptable stuff to show the world. The common belief is that if they don’t let anyone know, they’ll eventually come to believe it didn’t happen!

 

How can you recognize shame, this emotion behind feeling deeply embarrassed? One clue – do you entertain many judgmental thoughts towards yourself and others? Investigate this concept if you’re unsure. If you harbor negative critical attitudes about yourself more frequently than not, and (not so coincidentally) notice an absence of kindness, odds are your thoughts tend towards the similar in others.

 

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Those who’ve developed judgmental attitudes are frequently shame-based. You have to dig around deeply, because these attitudes can be deeply encrusted. For others, you’ll know immediately what I’m referring to, even if it rarely sees light outside of your own mind.

 

The connection here is that shame makes us smaller, contracted. Judging distances us from others, and from ourselves.

 

 

Feeling shame around illness

So back to the person who admitted feeling ashamed, because I know they’re not alone…

 

The body will do what it has to. Sure, we can often influence it, be proactive, take better care, make wise choices…and still genetics may trump all that. Despite our best efforts, our bodies can be robust, they can be frail. Universally, they traverse the full range over time. Eventually, sooner or later, virtually every body has the audacity to malfunction! Let’s face it, we rent the physical body for a few decades. Once born, or coming into being, there’s no other way out, it must whither, and die off.

 

For around a decade, from the mid 80′s – 90′s, I worked as a clinician in San Francisco, California, with those suffering with, and dying from, AIDS. I sat with patients on the medical wards or in their homes, during the time when it was certainly fatal, and before its name was universally known. Still striking mostly youngish gay men, I worked with my patients literally until their untimely, tragic deaths. In my personal life too, losses from this disease multiplied. Completing the immersion, my doctoral research was conducted upon the population of those with AIDS.

 

Countless of those brave, terrified souls taught me profound life lessons. Not least was the one about how to die. But the point is virtually universally they railed against it, the unfairness of it, the horror of loss of control, and yes, the shame of it.

 

But something unfurled the closer they came to the end of their life. The horror dissolved, the raging stopped, the desire for the sense of control evaporated. Acceptance regarding their inevitable fate seeped in.

 

And transformation appeared. You could visually see it, their ravaged bodies grew looser and movement became more fluid, their features softened, their words became more caring, even a little gallows humor snuck in. Process happened, in some cases reconciliation with family who had learned of their son’s gay identity the same time they had to absorb the news of their terminal diagnosis.

 

Any shame, and there was tons of it going around, took second place under the process of accepting what was happening. Eventually, it dissipated due to their growing ability to accept reality.

 

But back to the person who emailed me. Why would a person go to such lengths to conceal having Type 2?

 

In order to avoid feeling shame.

 

By contrast, my own reaction to being diagnosed was great disappointment, as I’d hoped I could manage to avoid dealing with the same illness that my father died from almost 50 years earlier. Aware that unchecked, disappointment may contribute to developing a degree of shame, I consciously took the pathway leading directly away.

 

I publicized it, which led to this blog you’re reading!

 

This isn’t a “my way is better than yours” point. I simply used it to illustrate how shame can lead to feelings of toxicity and isolation, while the other path of disclosure brings freedom. Actually, I’ll go further than that. Since beginning this blog, I’ve been astonished by the support I’ve received. A whole vibrant community mirrors back my experience, easing any mental suffering or resentment, minimizing any “poor me” or “why me” holes to fall into.

 

Hopefully you’ve stuck with me this far to receive the message.

 

Shame wants us to hide. It’s about who we are, not what we’ve done (that’s guilt). It’s powerful, and very uncomfortable! That which makes you squirm probably is something you’re ashamed of.

 

So what to do about it?

 

Deeply uncomfortable, the solution to feeling shame is unbelievably simple. The antidote is the very thing which you’d rather die than do…disclose it!

 

 

That’s right, you read it correctly. The instruction is simple, the action not so much.

 

Prepare yourself a little first. Don’t just take a deep breathe and blurt it out. First, soften the heart by cultivating self-kindness. Be especially compassionate, caring, open-hearted towards yourself. And include in your kindness and caring, all the feelings that you carry around this.

 

Acknowledge that you kept it hidden for protection, to be safe. That you needed, even deserved to be safe, still do. Perhaps back when, you didn’t feel safe, you were too vulnerable when that which you’re ashamed of happened.

 

If that rings true for you, cultivate and incline your heart to open lovingly towards yourself.

 

Don’t judge yourself. Chances are you didn’t choose to live like this. And if you can let go of

images (3)your internal judge, you’ll trust that others won’t be judging you. If there’s no threat of being judged, shame has no place to grow and fester. Awareness around this will bring acceptance.

 

 

 

 

Like a mantra, repeat to yourself;

 

May I be safe.
May I be healthy.
May I be happy.
May I live with ease.

 

Repeat those phrases, the lovingkindness, or metta, “prayer” as often as you can. If other words feel better yet convey the same meaning, use those. Pay attention, and you’ll notice a softening in your heart towards yourself or another you’ve directed metta towards.

 

By hiding it, you perpetuate that sense of being vulnerable. You effectively freeze that moment in time.

 

Choose carefully who to disclose it to.

 

A family member, longtime intimate friend, a therapist, someone whom you trust not to judge you. The non-judging is more important than to whom. Tread lightly, ensure you’re ready, that the timing is OK for both of you.

 

Ironically, some find it preferably to disclose to a stranger, a person who has no past or ongoing connection to your life or anyone you know. If that feels safer, go for it.

 

And here’s the kicker, the more frequently you repeat this disclosure, the less triggered you’ll be. You know it’s become just another fact about you when it can be talked about like any other aspect of your experience.

Filed under: Mindfulness

Comments

  1. Bennet says:

    Thanks. Great post

    Type 2 is NOT grounds for shame and it is sad that we live in cultures, yes more than one of them, that do. Type 2 is more a genetic condition that anything else and the very same gene pools that individuals take justifiable pride in a history of achievement fail to see they also may predispose people to type 2 diabetes.

    Have a look at http://thetype2experience.com an new collection of bloggers with type 2 who are working to help diminish the guilt and build strength and support in the type 2 community on line.

    • admin says:

      Couldn’t agree more Bennet. That;s why I decided to share her experience. I know she’s not alone, but shame is subjective, and pervasive, tending to keep things hidden that other people find just a fact of life.

  2. Thank you for sharing this! I have also talked to people that feel the shame. I have also started a blog about being ashamed and have done one on depression. I would like to share you post on my web site if you would be ok with that. I feel it is a very important subject.
    Thank you again!

    • admin says:

      Go ahead and share it Cindy. Glad it resonated with you…I’ll check out your site. Please be sure to link it back to my blog, and give me a byline or mention as the author.

  3. Graham Bottoms says:

    To the extent that Type 2 may be susceptible to environmental correction (including diet – a return to ‘real food’ perhaps), such corrective action follows acceptance. Flowing from metta practice, some may respond to trauma release using any of various techniques (my favorite is EFT or other tapping) which may address the shame. Not for nothing did Bette Rothschild entitle her book, “The Body Bears the Burden” in reference to the consequences of trauma, of which shame is so often a prominent feature.

  4. I’m researching how a month without sugar might effect someone with type 2 diabetes. Found your article on LinkedIN.

    Certainly more than I was bargaining for here with the shame aspect. Never thought of that (I do not have Diabetes – just a guy that loves living sugar free!).

    Humans will always judge other humans. It’s what happens instantly when any one or more of our senses encounters somebody. It’s natural. What each of us has is the power to choose is how much attention or bandwidth we are going to give towards trying to control the judgments of others and the cost of that energy in keeping us from being truly authentic.

    Shame can be healthy or toxic. It can motivate us toward improvement or it can spiral us down where we live small, inauthentic, and afraid.

    Great post. Thanks for shinning the light. And if you have any thoughts on how 30 Days Sugar Free might work with someone dealing with Type 2 Diabetes, I’d love to get in touch.

    Barry Friedman

    • admin says:

      Before my diagnosis 4 years ago, if someone would have said they’re going to try 30 days sugar free, I’d have had at lease 2 reactions. The first one would have been…”what’s up with this guy?”. The second one…”how on earth could he manage that?”. Both speak to the addictive nature of this substance, and my own incomprehension about how to do that.
      Fast forward and I’m right with you Barry, go for it, it’s totally doable. Several of my posts address cravings for starters.
      I’d be happy to talk more about this with you. Please email me to continue this conversation, I’m curious why you want to do this.

  5. I hear those 2 comments all the time, Josie :)

    I’ve been sugar free since Leap Day 2012. Started as a 1 day challenge, turned into a month, turned into a year. Now I don’t even see the stuff as food. There is no fight.

    I know that if I did it, literally anyone in the world could do it. There are some tough days in the beginning – no doubt. At some point (it’s been different for everyone I’ve supported through 30 days sugar free) the tide turns. The will shifts, and it becomes 80% easier.

    What I’ve found is that doing this challenge opens doors to just about any change someone wants to make in their life. As you mentioned, this one is so addictive and pervasive that beating it for a month is a hero’s journey. After a week or two, it’s no longer about the sugar.

    I felt called to create a site that supports anyone that wants to do such a thing. I’ve always followed my callings – even when they challenge me to give up stuff I love!

  6. VERY NICELY WRITTEN ! Kudos to you . I really enjoyed reading this. As a nurse practitioner and diabetes educator, I have seen countless patients who expressed their shame at having Type 2 diabetes and a handful who admitted they hadn’t told ANYONE in their lives, including spouses they had it. Oy vay !
    And this also exists for those with Type 1. I heard a gal say this just yesterday (she has Type 1 and wears a pump), that whenever she tells someone she has diabetes, they immediately assume she has Type 2 and pass judgement on her about it, saying “well, you don’t LOOK like you would GET diabetes !” . This bothers her and I can understand why. The public has NO IDEA what the difference is between Type 1 and Type 2.
    Thanks for your blog postings. I will keep on reading with great delight and interest ! Your new friend on the East Coast. AG

    • admin says:

      Thanks Alicia. Until it comes close to home, I find many people aversive around anything medical or health wise. I put it down to fear and an ostrich attitude!

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